Monday 5 November 2012

Recovering

In the past months I haven't been the best blogger, or the best company, or the best person to reply to any of the lovely and supportive messages I have been receiving... Shame on me...
However, I have a good excuse - I have been "too busy" recovering! HA!

I did my best to maintain a small diary in which I wrote everything regarding my post-op experience. I had great expectations about this little fella - it would be the most extensive and complete post-op report of all times!...
But three days after... I surrendered to the tiredness, general drowsiness, and lack of inspiration and willingness to do anything at all that is so common (at least I hope so!) after surgery. *sigh*

Have I ever mentioned that despite being the best guy ever, Davide is also a bit hypochondriac and a chronic worrier? Well, I found out that all his hourly questions of "how are you feeling? how's the pain? where is the pain? how much is the pain? why are you making that face - is it hurting?" were only to fill in his own diary. Oh, bless him! He's the best! 

Post-op day 1

The past months can be summarised by a single word: tough. In every way...

I arrived home from the hospital at around 10:30. I felt lost at home. It felt like I had been away for weeks, although little more than 24 hours had passed. I was feeling quite well, as the pain was being controlled by the medication, and I was surprisingly alert. The last thing I wanted to do was spending the day in bed, resting and being bored to death. But that was exactly how I spent that day, and the ones after.

The pain kicked in on day 2. The whole right side of my head was aching terribly - some of the severest pains I ever had to endure. It remained like this for the following three days, and I was only able to cope thanks to my good old friend tramadol (8x 50mg daily) and strong ibuprofen (3x 400mg daily), combined with paracetamol. Slowly the pain started to ease, but TMJ discomfort and swelling increased significantly. The swelling was pushing the lower jaw forward (creating a slight underbite) and to the left, affecting my bite. I could barely open my mouth (12mm maximum), it interfered with my speech, and swallowing was very hard.

Post-op day 5

A week after the surgery I felt a lot better. In fact, for the first time in 380 days I felt I didn't need to take pain drugs. And so I didn't. That was the stupidest thing I have ever done.
Being addicted to tramadol, my body didn't react very well when I decided not to take it. Especially taking into account that only a week had past since the surgery... In the end of the day, my body started to shut down. I was unable to stand, my speech was incoherent, I was shivering, soaked in sweat, and extremely sick. Soon I was throwing up all the contents of my stomach and much more... Needless to say, the TMJ pain came back must worse, and I was in bed again for the next couple of days, taking each pill as a bless.
On the ninth day after surgery the stitches were removed, and it was such a relief! With all the swelling, they became really uncomfortable as if my face skin was being pulled backwards. Although the stitches stung from time to time, the wound and the tissues surrounding it were completely numb. As time passes, I am slowly recovering some of the sensations around the scar, but the skin is still pretty much numb to the touch. The scar however has healed beautifully! It is almost impossible to notice it.

Can you see it?

A month after surgery, the pain had decreased, the swelling was gone, my mouth opening increased slightly, and I was eating normally again (although mostly soft foods). It was time to reduce my tramadol intake - this time gradually. This proved to be quite a struggle. It has been a long and stressful process, and I feel it may have slowed down the whole recovery, as it is one more thing my body has to cope with, heal and adapt. Currently I am taking only 50mg of tramadol a day. I wish I could decrease the dosage even further and eventually withdraw it completely, but unfortunately it is impossible at the moment...

Six weeks after the eminectomy, a consultation with my surgeon (Mr. C.) confirmed my fears - the disc is still anteriorly displaced. The diagnosis improved from without reduction to with reduction (explained here), but the disc is still out of place. Hence the constant pain I still feel (although far more tolerable and manageable than before), the extreme discomfort inside the TMJ (I feel as if my lower jaw is out of place, not fitting properly on the right side), and the pretty bad and annoying TMJ clicking and crepitus. If my current condition does not improve until my next medical appointment (January 2013), another surgery may be considered to recapture the disc. It is frustrating to think that all could've been solved if my surgeon wasn't so conservative during the eminectomy, if only he had opened the joint capsule to check the disc. But that wasn't the goal of this surgery. Despite it all,  I must say the eminectomy improved my condition significantly, and that for me was a great achievement!

I still feel pain and still take pain medication. In bad weather days I stay at home, as they make me feel terribly. I get tired very easily and can't do anything physically demanding. I can't bite an apple or chew a steak.
But I'm back to work and I ate pizza just the other day. :)

2 comments:

  1. Hello Ana, I have been checking in on the blog for months so happy to see your new posts. I had a feeling you weren't doing so well though due to the lack of activity. Glad you're a little better although not fully healed. Hang in there and will be thinking of you.

    Found out my TMJ isn't TMJ afterall but a form of gastric reflux called laryngopharyngeal reflux or LPR. Instead of feeling it in my chest like traditional hearburn I feel it in my ear and moving my jaw around makes a clicking sound in my ear that I misdiagnosed as TMJ.

    ReplyDelete
  2. ok, the good part it it still clicks and is in reduction...when you put your back teeth together is when your jaw locks up, but when you open your mouth and it clicks the sound is the jaw unlocking, your surgeon was good in getting your disks to reduce, but he probably does not know how to make it reduced permanently, since the jaw unlocks in the open position, you need to wear a functional appliace to stabilize your disks, then when the popping has stopped and increase in opening is high, you get braces to make the position permanent, so it NEVER unlocks, and then you'll have function back.

    ReplyDelete